So Ethan is back home...again. Yay! He was in this time for about 2 weeks. It was for tummy issues...his tummy was getting super big and the xrays were showing a massive amount of gas. So they would stop feeds, put him on iv's so they can help his tummy go back down. Then they would start feeds again with pedylite and he would do great, then move to milk and once again he would do great then they would start fortifying it with formula and his tummy would get big again. So about a week ago we asked if they could change the formula and the GI doc wasn't even giving it a thought! She said no, it has to be something else. So they continued giving that formula and would have to once again stop his feeds, put him on IV and so on. And another big issue was he wasn't gaining any weight. We were so PISSED because our gut was saying it was the formula and they wouldn't change it. One bad thing about the hospital, we are at their mercy...they get the final call! So finally after begging, arguing, crying and a new GI doc we finally convinced them to try another formula that wasn't milk based. They tried it yesterday and now he is home. He did well with it and it turned out to be a cow's milk protein allergy. We were his only advocate and we believed so strongly that the problem was his formula and we fought till we were blue in the face and it payed off! I was mad because we could have had him home sooner but I'm not going to dwell. I have my son home and we are soooo happy.
I will update with some pictures soon...just getting back into the routine of having two at home again :)
I'm happy to hear he is home again. :) You know all 3 of my kids had milk protein allergies as babies too. Hugs to you guys!
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